My name is Ryan Ballou and I am twenty-four years old. I am currently employed and working towards a college degree in the near future. My family and I are also heavily involved with the Muscular Dystrophy Association and that is because since birth, I have been afflicted with Duchenne Muscular Dystrophy (DMD), a degenerative muscle disorder that affects all muscles within the body. There are over 40 different variations with this type of muscular dystrophy which only affects boys. My family and I have had to cope with this disease and all of its complications my entire life. It is sometimes a challenge, but we always pull together and deal with whatever test is put in front of us from this disorder. However, we feel that it should not stop there. Not only can we deal with the disease, but we can also combat this disease by spreading awareness. As a family, we have volunteered at the MDA Labor Day Telethon for as long as I can remember. Also, I have given numerous speeches to parents of afflicted boys. Through this medium, I hope to spread awareness to these parents and let them know that there is hope. Nevertheless, my family and I believe that we could do something more to aid this cause. My father, Ty, along with our input, started a charity called BallouSkies to help spread more awareness and even raise money for research.

The amazing part of this whole story is that at age twenty-four, my heart is still healthy and functioning as it should. This is crucial because as time passes, all muscles are affected by Muscular Dystrophy, and as we all know, the heart is the most important muscle of all. Also, the risk of heart complications increases with each passing year. Not all boys that are affected by this disease are as fortunate as me to have a healthy heart. Many of these boys, some even younger than me, are facing heart problems or will at some point in their lives due to the disease. My family and I believe that this is a very important issue. If we could somehow slow down or even stop these heart complications, better treatment or maybe even a cure are very possible one day. The main focus of BallouSkies is to raise awareness for this research and gain funds to aid the heart clinic at Ohio State University (OSU). Here, Dr. Stephen Cook and his team of doctors are actually using MRI technology to scan the heart. The doctors take a patient with DMD and scan their heart. These MRI scans show the doctor a patient’s heart from every angle and every aspect of the heart can be scrutinized. At Ohio State’s clinic, they are testing boys of different ages with this technique. The goal of this is to check for scarring and other heart problems and then track these problems with future MRI’s. This would allow boys and their families to know if there is a complication before it may become untreatable. This can help DMD patients and anybody with heart problems. This research can lead to breakthroughs and may even aid in curing this incapacitating disorder along with many others.

This disease offers many challenges and complications, but with this treatment, we may be able to take some of the worry off of the families and the individuals actually suffering from this disorder. With this research, we could find treatments and learn even more from all of the data collected. Imagine longer life spans, and a better quality of life. This research, I feel, would be foolish to pass up. As I said, this research can lead to cutting edge treatments of any heart ailment, not just in those caused by Muscular Dystrophy. If we can help to slow down the deterioration of the heart, this may lead to other muscles and in turn could aid in finding a cure. As I have repeated, the heart is the powerhouse that runs our entire body and allows us to live. Therefore, I believe this is one of the most important avenues of research to follow.

One hundred percent of the money raised by BallouSkies goes to the heart clinic at OSU which allows them to perform the MRI procedure and collect the data. That is why my family and I are trying our hardest to raise awareness. I am almost positive that many who read this will agree with me and find that it would be a shame if this research could not take place. Please help my family and me to help, not only myself, but all boys affected by DMD and all those affected by other forms of Muscular Dystrophy. Every little bit helps and together we can achieve the main goal of healthier hearts and longer life spans. We can battle the disease together and through our efforts, gain insight and create treatments that could help counteract the affects of this debilitating disease.

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Ballou Skies | c/o PLB, Inc.

Penn Center West, Building III | Suite 411

Pittsburgh, PA 15276 | (412) 787-8800

UPDATE: January 6, 2012

Hello all. I hope everyone had a wonderful Christmas and a happy New Year! The last two weeks were a much needed break from the monotony of the cold gray winter weather. Unfortunately that peaceful time is over and this week we were thrown back into the rush of things. However, I am excited for another year of life and another year of fundraising! This past year was our most successful effort yet. We raised $60,000 for the research being conducted at Ohio State University. This is an amazing accomplishment and our hard work and persistence has literally paid off! I would like to thank everyone who helped with our events and I am forever grateful to each and every person that has donated any amount of money to the charity! Without all of the help we have received none of our success would be possible. I can only hope that we continue to grow and raise even more money for this vital research. 2012 is full of opportunities and I believe will be our best year yet!

I have good news from my last appointment with Dr. Raman! About a week ago my dad and I made our annual trip to the Ross Heart Hospital on Ohio State’s campus. This year marks the five year anniversary of my first MRI of my heart. The results of this latest scan were awesome! The scarring on my heart has not progressed at all and my heart is healthy with normal pumping function. This is amazing news and my family and I are ecstatic about these results. It just proves that we made the right choice in taking this medicine and all of our efforts with the charity are well worth all of the hard work. I cannot think of a better way to end this past year. The best part was lunch with Dr. Raman after the MRI where we presented her with a check for $60,000! This was a great moment that I will always remember. BallouSkies has come along way since its humble beginnings and none of us could have ever dreamed that we would have been so successful! Again, this is because all of the support we have received from so many kind people. This made the holidays more joyous than ever and I can only hope we make an even bigger difference in 2012!

This year is very exciting because of the study that will be conducted at Ohio State under Dr. Raman. Dr. Raman and her research team have conducted studies on mice with MD to formally test the drugs effectiveness in slowing down the scarring of the heart muscle. Now, after careful planning and the help of our charity and the hard work of the doctors and researchers at OSU, this year Dr. Raman will be conducting this study on boys and young men with Duchenne M.D. This is very important on the road to get this drug treatment implemented for all DMD patients. If the study can prove that this drug, Spironolact has a profound effect on the progression of scarring on the heart muscle than that would be a huge step forward. I am excited for the study to be conducted and cannot wait to see the results. It is even more satisfying to know that we have come to this point because of charity and something I did is making a huge difference. Stay tuned for updates on the study and for upcoming fundraising events! 2012 is a big year for the charity and I cannot wait to have an even bigger year than 2011! Again, thank you all for everything and I hope you can accomplish everything you set out to in the new year! Stay warm and be happy!

So it is Fall, Winter is right around the corner, and I don’t like it one bit! Of course, the dropping temperatures and the prospect of the snow to come are not helped by the fact that I recently returned from a trip to Hawaii! In my last update I wrote about six of the BallouSkies tri-team members qualifying for the 140.2 mile Ironman race in Kona, Hawaii. Well my father and I decided we should go along with them to support their efforts in the triathlon! This was the least we could do to support these outstanding individuals. We wanted to show them that just as we inspire them, they inspire us as well. Plus, it didn’t hurt that the race is held in Hawaii! We were in Hawaii from October 5th through October 11th and had a great time visiting with the team and enjoying the beautiful paradise of the island! For any one who has not been to Hawaii, you have to believe me when I say it is something you must do in your lifetime! I could spend countless hours trying to describe the beauty and all the sights I saw, but I wanted to focus on the actual day of the Ironman race and try and share the sights and sounds of this amazing event.

Race day started bright and early at 3 A.M. In order to get down to the race start we had to leave prior to the main highway being shut down. The main road is closed to all traffic all day because the majority of the 112 mile bike segment of the race is on this road. Also we were excited to get down to Kona as soon as possible to get a good spot to see the swim start and beat most of the crowds that congregate for the race. After a minor mishap of our cab not showing up on time, we made it down to the race by catching a ride with an athlete actually competing in the race! We arrived around 5 A.M. to find a good spot to view the start of the race. We found a nice little breakfast place that overlooked the bay and the actual swim start which is the first leg of the race. Even at this early hour the streets are full of fans cheering on the athletes and actual race competitors filing there way to the transition area and race start. The atmosphere is almost indescribable. The air is filled with excitement of the amazing accomplishments the day will bring. We actually got to see two of the athletes (Chad Holderbaum and Jeremy Cornman) while they were on their way to the race start. We snapped a quick picture and wished them the best of luck for the day. BANG! A gun blast announces the start of the swim and the strenuous 140 mile journey that awaited the athletes. After we witnessed the mass start we stayed until the last swimmer was out of the water. After this we found an awesome vantage point for the run. We positioned ourselves on the side of the run course at mile 2, this way the BallouSkies athletes were guaranteed to run by us. One by one they ran by us as we cheered them on! I got pictures of all the athletes as they passed. This was an amazing feeling to cheer on these team members. BallouSkies started with just my family, and now we were in Hawaii cheering on the BallouSkies tri-team. This is mind blowing to me. It is so awesome the amount of help we have received to continue our charity and our dream. We stayed long enough to see Chad and Jeremy cross the finish line in their BallouSkies jerseys, holding up a heart sign. This was another amazing moment I will always remember! To see our hard work and the athletes’ hard work paying off is truly awesome and I am thankful for how far the charity and everyone involved has grown. I have tons of pictures of the race and the whole trip on my Facebook page; feel free to check them out! Hopefully they can convey some of the feelings the trip and the race instilled in me!

As for our latest fund raiser, it was a huge success! Last weekend we held our second annual happy hour fundraiser at Buckhead’s in Station Square. We had a good turn out, good times and managed to raise about $1,200 in the process! Thanks to all who attended and all who made the event a success! Our next big event is on November 9th. This event is our first annual BallouSkies Champions Gala being held at Enginehouse Number 25 in Lawrenceville. We are really excited for this up-scale event. Hopefully it will become an annual event! For more information about the event check out the event page on Facebook or contact me or anyone involved in the charity for more details! It has been a great couple months and I am very happy with the progress we have made! Cannot wait until the end of the year when we can unveil our total amount raised! Stay warm out there!!!

I cannot believe it is September already! Time seems to be flying by at an unusually fast pace. Fall will be here before we know it! I cannot believe it has been close to six months since my last update. Since that time however donations have steadily been sent to help our cause. More people than ever are recognizing BallouSkies and generously donating their time and money to help us reach our goals! The BallouSkies tri-athlete team has been very busy as well. They have competed in numerous events these past couple months proudly sporting the BallouSkies colors. I am also proud to announce that through their commitment to their sport, six of our athletes have qualified for the Ironman Triathlon in Kona, Hawaii. This is a prestigious event and only the best of the best are invited to participate in the event. These elite athletes, along with yours truly, will be featured in an upcoming advertisement for BallouSkies in Triathlete magazine. Not only does this allow us to spread more awareness for the cause, but it allows us to showcase and thank the athletes that run under the BallouSkies banner. I know that I inspire them, but they inspire me as well and I am glad to know each and every one of these individuals.  As I have said before, it is always great to hear stories of people cheering for BallouSkies during these races. Another great thing I hear is just how inspiring the charity has become to other tri-athletes. It is nice to know that BallouSkies can affect and help a lot of people in various aspects of their lives. BallouSkies helps people to keep their physical heart and their emotional heart healthy. If we can come together to battle this disease we can do anything!

I now want to take time to let everyone know about the success of our most recent fund raising event. A couple months back on July 9th we held our second annual BallouSkies charity bike ride. The event took place at the Old Economy Café out in Ambridge. I want to say that anybody who has not been there has to, and I mean has to try the pulled pork. The event consisted of two separate ride: a 25 miler and a 50 miler. We could not have asked for a more beautiful day or a better group of people! Many of the BallouSkies race team members were in attendance, as well as old friends, family and a couple new faces as well. My Aunt Brigitte drove in from Chicago to be there to support the charity. Also, my cousin Josh made the day-long journey from Thailand to be there with us as well. I cannot express to them how much it meant for them to be there and how great it was to see them! It was nice seeing them and it was even better that they wanted to help the BallouSkies cause. This event helped me to realize how lucky I am to have such great people surrounding me and jumping at every chance to help raise money and awareness. In just one day we raised just over $4,000 and had a blast as well. As I mentioned the food and drink were delicious! A live band played music and the atmosphere was festive. These events make all the hard work worthwhile. I find so much satisfaction in being able to thank everyone for everything they have done for me and the charity as well. In the next coming months we should have more details on our next event so look out for that on the site.

I will end the update as I usually do. If anybody out there would like to become involved or learn more about the charity please don’t hesitate to check out the website or contact us directly, I would be happy to help people to become involved. We are always looking for ways to improve our events and welcome any suggestions! I can only hope that BallouSkies will continue to change individuals lives and as always, gain more attention and assistance from all of the wonderful people I have become involved with since the forming of BallouSkies! Every one enjoy the transition from summer to fall and be sure to check back often for updates on research breakthroughs and upcoming BallouSkies fund raising events!

I now want to let everyone know about the success of the most recent fund raising event. On July 9th we held our second annual BallouSkies charity bike ride. The event took place Old Economy Café out in Ambridge. I want to say that anybody who has not been there has to, and I mean has to try the pulled pork! The event consisted of two rides: a 25 miler and a 50 miler. We could not have asked for a more beautiful day or a better group of people! Many of the BallouSkies race team members were in attendance, as well as old friends, family and a couple new faces also. My Aunt Brigitte drove in from Chicago to be there. It was really great to see her! Also, my cousin Josh made the day long journey from Thailand to be in attendance. I cannot tell you how much that meant to me! Was nice to see them and was even better they wanted to help the BallouSkies cause. This event helped me to realize how lucky I am to have such great people surrounding me and jumping at every chance to help raise money and awareness. In just one day we raised just over $4,000 and had a blast as well. As I mentioned the food and drinks were delicious! A live band played music and the atmosphere was festive. These events make all the hard work worthwhile. I find so much satisfaction in being able to thank everyone for everything they have done for me and the charity as well!

I will end the update as I usually do. If anybody out there would like to become involved or learn more about the charity please don’t hesitate to check out the website or contact us directly. I would be happy to help people become involved. We are always looking for ways to improve our events and welcome any suggestions! I can only hope that BallouSkies will continue to change individuals lives and as always gain more attention and assistance from all of the wonderful people I have became involved with since the forming of BallouSkies! Stay cool out there and check back often for updates on research breakthroughs and upcoming BallouSkies fund raising events!

The sun is out and the blue skies have returned. I don’t know about you guys, but I am sick and tired of the snow, rain, and cold temperatures! During these first few months of 2011 the BallouSkies team has been planning and thinking about what we can do in 2011 and how much money we can raise. I can say that the BallouSkies team of tri-athletes has grown and has gained more attention and members. We now have more people racing under the BallouSkies banner than ever before! I know I may be repeating myself, but it is great to know that so many people care about and want to assist BallouSkies. Donations are still coming across daily and I thank each and everyone who has donated to our great cause. Without the help and support of everyone BallouSkies would never have been this successful. And now almost five years after its creation, BallouSkies has gained more awareness and raised more funds than any of us could have possibly imagined. Recently the entire BallouSkies race team met for a photo shoot for an advertisement that is to be in Triathlete magazine in the near future. It is great to know that everyone who sees that advertisement will hopefully recognize the importance of this research. And hopefully this will help to put their lives in perspective and help them to grow as a person. The picture showcases the dedicated individuals that are assisting us in our fight against Muscular Dystrophy. I want to thank each and every one of them for their time and efforts to help spread awareness and raise funds. The charity would not of had the success it has gained without these individuals.

This advertisement, however is just the beginning for 2011. Since out success in 2010 we believe that we can do even better in the coming year. We plan to have our benefit walk and host another happy hour fund raiser event. We have plans in the works for an upscale benefit to be held for BallouSkies. We want to maximize our opportunities and take the best approach to raising the needed funds for the awesome research being done at Ohio State University. Even though it is still early in the year we realize that our work must never stop and planning must be our top priority. We have had success with fund raisers in the past and we want to continue our streak of great events held under the BallouSkies name.

Please get involved and help out. If anyone ever wants to get involved with BallouSkies please do not hesitate to contact us! We could always use more help in planning and running our events. We raise money and have fun at the same time. I will have more information in the next couple weeks about upcoming events and how people can get involved or come out and support the cause. Please check back soon for specific dates and further information. Until then the BallouSkies team will continue to work towards our goal of slowing down the effects of Muscular Dystrophy! Enjoy the sunshine and warm weather as springtime draws near!